, was stirred in the kitchen and noodles. At this point the spoon slipped from her hands and fell into a pot of boiling water. The girl then went to school in the second shift, the TV was working in the living room, and her mother was folding bed clothes on the couch.
Without hesitation, Ashlyn Blocker (Ashlyn Blocker) dropped her right hand into the water to get a spoon, pulled her out of the water and looked at it in the light board. Then she walked over to the sink and sent a stream of cold water on all the little faded white scars, and then shouted to his mother: "I just dropped her fingers there!"
Her mother, Tara Blocker (Tara Blocker) left their clothes and rushed to her daughter. "My God," — she said — after 13 years of the same fear — and then she took a few ice cubes and gently put their hand to his daughter, a little reassured that the wounds were not so scary.
"I showed her how to use the other objects in the kitchen can get a spoon out of the pan," — said Tara when she is with a tired smile on his face told me this story two months later. "But there is another problem — admitted Tara. — It was the use curling hair, and they get very hot. "
Tara was sitting on the couch in a tank top with the words "Camp I live without pain, but with the hope» (Camp Painless But Hopeful). Ashlyn is located on the carpet in the living room and engaged in knitting bags of skeins of yarn that have accumulated in her room. Her 10-year-old sister Tristen (Tristen) slept in a leather chair in the arms of his father, John Blocker (John Blocker), who settled there after work, and gradually fell asleep, too. In the house smell of homemade pasta and cheese, cooked for dinner. Heavy rain in South Georgia drumming on the gutters and lightning occasionally lit up the area for training baseball strikes, as well as a pool in the yard.
Without taking his eyes off her crochet hooks, Ashlyn came into the conversation, and added one more detail to the story of his mother. "I just thought then what have I done? '.
I spent more than six days in the family blocker, and I saw that Ashlyn behaves like a normal 13-year-old girl — combing hair, dancing and jumping on my bed. I also watched as she rushes like mad through the house, not thinking about my body, and my parents asked her to stop. She also fought in the air hockey with his sister, and at the same time struggling beat the puck on the table, trying to do it as quickly as possible. When she was making sandwiches in a frying pan, she hands touched the bread, as my mother had taught her: she had to make sure that the bread is cool enough, and it can have. She can feel the heat and the cold, but it does not apply to more extreme temperatures at which normal people feel the pain and immediately pulls his hands.
Tara and John did not feel completely calm when they left Ashlyn one in the kitchen, but it had to be done — it was a concession to her growing independence. They made a rule for myself to tell stories about what it is responsible girl, but each of them should have the accompanying story, listen to that was not so easy. Ashley once burned his hands when she was two years old. John used a high-pressure wash the driveway and left the engine running, and the moment when they lost sight of Ashlyn, she went to the machine and put my hand into the muffler. When they raised them, the skin was burned.
Another was a story about a fire ants attacked her in the backyard and had time to more than a hundred times to bite her, while she looked at them and shouted: "Ants! Ants! "One time she broke her ankle, but then ran for two more days, until the parents do not understand — what is not in order. They told me all these stories as calmly as if it was in them about the game of softball or Tristen about the technology shock of their son Derek (Dereck) in the game of golf, but it was obvious that after all these years, they continue to think about how to protect the life of his daughter.
A couple of days after the story about lowering your hands in boiling water Eschlin sitting in the kitchen and played with a bandage on his head, with which she leans back her long, dark brown hair. We were all busy with face painting napkins, playing checkers and listened as Ashlyn and Tristen singing the song «Call me maybe», but Tara suddenly cried out and held up her daughter's hair. In Ashlyn's head dripping blood. Her dressing dug into her skin all the time, when we were sitting there.
Ashlyn almost always wears a bandage on his head and slippers, as well as the doctor prescribed her dark-rimmed glasses, and even bracelets of beads, which she keeps in a jar under the old firm cucumbers Vlasic. She sells her knitted bags for five dollars to friends in high school, Pierce County (Pierce County Middle School). When she laughs or smiles, you can see the transparent mouthguard Invisalign, since metal braces could hurt her tongue or gums, and she did not even notice. She is also a medical identification tag, which it attaches to the silicone bracelet, corresponding to the color of her clothes. On its reverse side is the inscription: "Do not feel pain — sweating a minimum."
In school, she was once asked whether it Superman? Does she feel the pain if someone hits her in the face? Can it go on hot coals as on ordinary grass? Will it hurt if she gets stabbed in the arm? The answers are no, no, yes, no. She is able to feel the pressure and texture. She feels a hug and a handshake. It all felt when her friend Kathy painted her toenails. "People do not understand me! — She said one day when we were playing checkers on her planshetnike iPad. — All the guys in the class I asked about it, and I say, "I feel the pressure, but I do not feel pain." The pain! I do not feel it! I constantly have to explain it to them. "
When Ashlyn was born, she did not scream. It issued a barely audible sound, and her eyes on the red little face carefully watched the scene. After the birth, she had a such a terrible irritation that Tara even frowned, bathing her, and then pediatricians advised her to change the recipe, put ointment on the inflamed areas and keep them dry. "But I kept thinking that she is not crying — Tara said. — Doctors have rejected these concerns, but we continued to ask the question: What is going on? "
When Ashlyn was three months Blockers moved from Northern Virginia in Patterson, Ga., where the family of Tara. When Ashlyn was six months old she was swollen and very red left eye. Doctors suspected acute conjunctivitis, but Ashlyn did not respond to medication, and then Blockers turned to an ophthalmologist, who found extensive damage to the cornea. The ophthalmologist suggested that the girl is no corneal sensitivity and forwarded them to the children's hospital Nemrous Children's Clinic in Jacksonville, Florida. It took some time to arrange for admission, but prior to their departure to Jacksonville Ashlyn brushed his nose and almost chewed part of his tongue in her teeth erupted.
The clinic doctors took Ashlyn blood sample had a scan of her brain and spine, but these tests did not give any definite results. Over the next 18 months, there were further study. A biopsy of the nerve from the back side of her left leg scars that diverged during the run. When the doctor finally told her the diagnosis, Tara was afraid she would forget all these words, and so I asked them to write down. The doctor took out a card and wrote on the back: "Congenital insensitivity to pain."
The doctor told us that we are the only ones — Tara said. — And this is a very rare case. He told us that we followed her closely monitored and that physicians not much is known about this disorder, and therefore they are nothing special can not help. It sounded as if he said, 'Well, I wish you good luck! "
House of Tara introduced the word "congenital insensitivity to pain" into a search engine and began to get acquainted with the materials. They were not so much, and they mostly dealt with the injuries and early death. No comforting advice was not there.
"Neither John nor I never heard anything about such things — she said. — It was incredible. And it was scary. " They got help from people in Patterson, municipal settlement with less than 700 inhabitants. When Ashlyn started going to school, the teachers were watching her in the school yard, one person was specifically instructed to see to it that all the time it was all about Cay. The nurse washed out her eyes and checked her shoes every time she came to school after the holidays. She called it "Pit-stop for road racing Nascar» and saw to it that in the eyes there was sand, which could damage the cornea. She also checked the scars on her legs. "It has sharpened our ability to observe — Tara said. — I have learned to see some things before they happen. "
Blockers rid of furniture with sharp corners. They have to lay on the floor is very soft carpets. They did not allow Ashlyn rollerblading. They bandaging her hand in several layers of cheesecloth so that she could not comb them. They used a special baby monitor in her room in order to hear the sound coming from the teeth during chewing. But, nevertheless, they could not sleep, they transferred her to his bed, and Tara held her hands Ashlyn to that night could not bite your skin or rub your eyes.
When my daughter was five years old, Blockers decided that the only way to find a person in the world, similar to Aisling, is to give an effect. They made contact with the local newspaper The Blackshear Times, and in October 2004 it published an article about Ashlyn. The Associated Press has also extended this article and Tara remembers how, after this photo was Ashlyn on the home page of the portal MSN next to images of George W. Bush and John Kerry. Ashlyn grandmother in Virginia saw this picture at work and called Tara in Georgia. "Did you see Ashlyn on the World Wide Web? — She asked. "!" Turn on your computer! "By this time, of course, already knew everything Blockers. "They have already called the program" Good Morning America »(Good Morning America).
Blocker family aircraft were sent to New York, where they were guests of the program "Good Morning America" as well as gear «Today Show» and «Inside Edition». They all told the story of how she Ashlyn inflicted self-injury. When they arrived back in Jacksonville, people have come to recognize them at the airport. They interviewed a special trip group of French news channel, as well as the correspondent of BBC. Reporters Japanese TV channel gave them bamboo chopsticks. They also called TV host Oprah (Oprah), but its program they have not got. They also agreed to the proposal from the Herald Rivera (Geraldo Rivera), and denied Maury Povich (Maury Povich). January 24, 2005 Ashlyn was on the cover of the famous People magazine with Brad Pitt and Jennifer Aniston (Gennifer Aniston) under a large yellow headline: "Brad and Jen: Why they broke up."
All this attention from the media allowed in the end the family blocker to make contact with the scientists can help them understand the condition of their daughter. Dr. Roland Staud (Roland Staud), a rheumatologist and professor of medicine at the University of Florida, heard about Ashlyn and invited blockers in Gainesville (Gainesvill), where he has for 15 years been studying chronic pain. The consequences of the state of Ashlyn was very serious. It is a natural anomaly. Over the next few years, Dr. Staud tested the genetic material of Ashley and eventually found two mutations in its gene SCN9A. That this gene is mutated in a special way, leads to a very severe pain as well as the appearance of chronic pain. Staud reasoned that if he could understand how such a mutation occurs, it will be able to correct this deficiency in people suffering from chronic pain.
The link between this gene and the intensity of pain was discovered in 2006 by British geneticist named Jeffrey Woods (Geoffrey Woods) in Cambridge, England. "I used to work in Yorkshire, where many Pakistanis immigrated" and where there were many marriages between first cousins and second cousins and sisters, said Woods, when we talked with him about the case. "I've seen a lot of children with genetic diseases," — he added. Obstetrician, who came to England for a course, convinced Woods to go to Pakistan and spend their research. During one of his trips he was asked to see the boy in Lahore, who was said to not feel pain. "I agreed and we went to see him," — said Woods. They were met by his mother and father, who said that the boy had died.
"On the day of his birth, he wanted to do something special for my friends and decided to jump off the roof of the second floor of his house — told me Woods. — And he did it. Then he stood up and said that he was all right, but the next day he died of a hemorrhage. I realized that the pain has a different meaning than I thought before. The boy had no pain sensation, which would restrict his actions. When I got back to England, I found three more families whose children were in the same position — they had numerous injuries, bitten lip bitten tongue bitten hands, fractures and scars. And in some cases, the parents almost selected children as they were suspected of abusing them. "
Woods and his colleagues began to carry out research of the genes that cause the disorder, and eventually came to the gene SCN9A. The ability to perceive pain nerves on the surface of the body usually react in the moment when we touch a hot or spicy, and then they send electrical signals to the brain that make us react. These electrical signals are generated by molecular channels created by the gene SCN9A, says Stephen Ueksmen (Stephen G. Waxman), Professor of Neurology at Yale Medical School. Descended from Ashlyn gene mutations are not allowed to create these channels, and therefore the electrical impulses do not arise.
"This is an unusual disorder — said Woods. — The boys are dying at an early age because of their more risky behavior. This is very interesting and allows you to understand the following: pain exists for several reasons, and one of them is to get people to use your body correctly, without inflicting damage, and also provides the ability to control what you're doing. "
When I visited the office of Roland Stauda in September of this year, at first he was unwilling to talk. When I described to him the week spent with Ashlyn, he began to talk about it as if it were his own child. On the bulletin board behind his desk hung a picture of her. He watched her as she embarks paper doves in the lobby of the clinic after many days of the celebration of the tests, and every year he posed for a photo with her family. He watched as she was growing up. "Her life story provides a striking snapshot of how difficult life can be, devoid of guidance from the pain — Staud said. — The pain — it is a gift, and she denied it. "
When Ashlyn was nine years old, Staud asked John and Tara's permission to conduct a series of medical tests to determine what level of sensitivity has Ashlyn. It can recognize and feel the tickle of a pinprick, but it is not able to capture the extremes of temperature. He also had with her a series of psychological tests and trying to figure out whether it has the ability to feel emotional pain and compassion, and came to the conclusion that Ashlyn is very talented and friendly girl.
Staud wondered what would have happened to Ashlyn in adolescence, if it ceased to obey their parents, and how it would reflect on the state of her health. "We know very little about this phenomenon in the long run — he said. — What would be her emotional state? How would it evolved? "We sometimes feel emotional pain physically — Staud has led the traditional sense of a large sample of grief and physical pain that occurs at break of love affairs — and he was trying to understand whether the relationship between the body and the emotions go in the opposite direction. He asked himself, would not occur in humans, do not feel physical pain, to a certain extent the delay in development? "It is quite possible that some of the pain in her present — said Staud, talking about Ashlyn. — It's one of the reasons that we are watching her. She is currently undergoing a period of hormonal changes. A period of puberty. Afraid if she did? She threatened only emotional consequences. She is a very calm girl and her parents have learned to influence it, without resorting to means of physical contact. " Staud paused, then added: "I do not think she cries often."
But in fact, Ashlyn sometimes crying. She cried when earlier this year lost her beloved dog. After this long Ashlyn lay curled up in bed with their parents. "She is able to sympathize, — said to me, Tara. — It is really capable of doing that. I do not know whether doctors were able to fix it in the course of their research. But I know she can, I know it in my heart. "
Heavy rain one night when I was their guest, turned reddish driveway in front of the house is now Blocker lake. John came home from work, drenched to the skin, and pulled out of the fridge a bottle of soft drink Mountain Dew. He works for the phone company Alma, and often rides his truck on Highway 84 past the flags of the athletics team Georgia Bulldogs, hanging at home, as well as by several billboards on which Patterson described as "one of the 50 best cities in America to raise children." The city and the surrounding area it is known as a "phone person", and it is often turn to him at an inopportune time, rather than the phone company and ask for John solve their problem.
"With me the other day something happened — he said, a little prosohnuv. — I was in school, and suddenly a man said to me: "Let me ask a question. Maybe it will be a little strange, I just want to use this as an example. Are you saying that if she was going to, say, cut off his own arm … "
"My God," — cried at that moment Tara.
"Well, I'm, like, say — the horror! — John continued. — And he said, Oh, OK, so you're saying that she would not have felt? "Well, I say," It would have saw it and was scared. " But he said: "Yes, yes, but she would not be hurt?" And I said, "No", but what he said: "This is amazing."
Ashlyn, who was sitting at the kitchen table, supporting her head with her hands, looked at us, smiled and said: "Why should I cut my hand?"
John and Tara heard Ashlyn cried out and said, "Oh", when she became a witness of how someone else getting hurt. And Ashlyn did the same thing when her father told how he stabbed himself in the nail right thumb during the construction of the pen for the chickens, but she does not understand why his face turned red, why he cried and held up his thumb. She said that for many years carefully studying the reactions of other people and learned to shrink when someone describes something painful.
"My daughter is going on in your head when you see someone hurt themselves?" — Asked her, John.
"I feel sorry for them, — she said. — Because they are in pain, but I'm not. And I would like to help them. "
"Describe how you understand the pain — John asked. — What does this mean to you? "
"I do not know."
"When you see someone else in pain, with which we identify with?"
"I think that it must have hurt."
"And what does it hurt?"
Ashlyn's eyes narrowed, thus showing that it is deep in thought. But she was not able to answer this question.
One Saturday morning last year Ashlyn woke up in the afternoon — she likes to sleep a long time. Then she went into the living room and told her mother: "I had a dream." Tara thought Ashlyn is going to tell her some fantastic story, but instead she said, "In my dream, I organized a camp for kids like me." She said that in her dream she saw the lake and the boat, and still vividly imagined children running around out there, which she had never known before.
That's how the idea was born organization "Camp No pain, but with the hope» (Camp Painless But Hopeful). Tara called the camp called Camp Twin Lakes in Winder, Ga., located four hours drive from Patterson, and asked them about the possibility of holding a weekend for children who do not feel pain. The camp has given its consent. Tara will act as a coordinator and pay for accommodation in lodges, insurance and food, and camp administration will take over the cooking.
Blockers produced T-shirts and stickers pasted on their cars. The local radio station gave them free time for the announcement of the fundraising over a barbecue hosted by the parking lot at the Rite-Aid Pharmacy in Blackshear (Blackshear). Ashlyn sold it to my friends a few made her own purses and jewelry. Tara placed ads of this camp on a special page on the social networking site Facebook called "The Gift of Pain", organized a support group for families with children do not have the sensitivity to pain. "Anyone interested in attending the camp for families like ours?" Eight families gave their consent.
The camp was organized at the beginning of November, when the weather gets cooler Georgia and the temperature is more favorable for children who almost can not sweat. Experts have identified three genes associated with congenital insensitivity to pain, and they suspect that there is this kind of genes, which have not been able to discover. Some of the children who came to the camp, there was a mutation in the gene NTRK1, which is associated with the development and maturation of the nervous system and that, in addition to insensitivity to pain, causing mental retardation, frequent colds, and a tendency to self-mutilation.
In 11-year-old Roberto Salazar (Roberto Salazar) from Indianapolis, who came to the camp with her mother, there was just such a mutation, and for a short period of his life he managed to bite off part of his tongue, pull out his teeth and ankle cripple its own weight. He once jumped a flight of stairs. Most of the year he was forced to spend at home in the conditioned space, because he does not sweat, and his body temperature can change very quickly, which is very dangerous. Mama Roberto Susan saw the name Ashlyn article a few years before and got in touch with Tara. Since then, they keep in touch, share stories taking place with their children. Roberto came to the camp on a scooter. He skated on it other children, bringing them pleasure.
Brown family of Mapleton, Iowa, came to the camp on the truck of nine people, and among them was also a three year old by the name of Isaac. When Isaac was a baby, he lowered his entire hand in a cup of hot coffee and my mom is not crying. And he put his hand on a hot stove, to give the third-degree burns, but did not cry. My parents took him to a neurologist, who recommended to genetic tests, but the boy's family could not afford it. But after he scissors to cut the toenails themselves eyelashes, his mother Carrie told her husband, "I can not stand it." In 2010, they took her son to the clinic Mayo Clinic in Rochester, Minnesota. Doctors told Carrie that, in their opinion, her son's congenital insensitivity to pain, but they need to find the same gene in which the mutation occurred. They included Isaac in his studies, and began a long process of searching for an explanation, but so far, according to Carrie, it is not found.
Carrie Brown Tara found through the Internet, and they came to the conclusion that it is impossible to miss such an interesting opportunity — to spend some time with other parents who share with them this frightening experience of living with children who can inadvertently cause themselves injury. The family of the Browns seven children, and they live on the salary of her husband, who is a registered nurse. However, they decided to go to any event, Georgia, even if the means therefor are not able to pay another bill. The Church as a gift gave them $ 400, and the money Brown family was able to finance his trip. They were on the road for 18 hours and stopped for the night in the "Motel 6" in Chattanooga, Tenn., where they unsuccessfully tried to get permission from the valet to stop all nine members of their family in one room.
The Browns were in the first camp. When pulled up Blockers, Tara got out and hugged Carrie, who was standing next to his truck. They both wept.
"I just … I do not know how to explain it, — said Carrie. — I thought I finally met another mom who understands me, who will not judge me for being too cautious, because she knows how important it is. She knew it. "
The first night in camp, Ashlyn had prepared some traditional desserts — SRAs (s'mores), and then made the trip on a truck with hay along with other children. She looked a puppet show. She also appeared on the suspension rope. She danced. She was particularly attracted little girls. She held them up and gently stroked their backs. She helped them to decorate the stones to pass, including beads — these were small concrete blocks, which will now reside on this site in memory of the camp is held there. "It was just great — to see the same children as I do" — said Ashlyn.
In the life of Karen Cann (Karen Cann) was a lot of wonderful, but there was a lot of pain, even though she had never been felt. When she and her sister Ruth were children and lived in Scotland, no one could explain what was happening to them. As Blockers, their parents lived in fear — they are afraid of what girls can cause yourself any harm, and they will instead look similar to themselves people prefer nothing to stand out. "We do not like to be considered abnormal," said my 35-year-old Cann and then added: "But I think we're crazy." Neither Karen nor her sister almost can not sweat, and they lack the ability to sense odors. (Ashlyn's parents have also found that their daughter does not smell when it became excessively use perfume, spraying them out of the bottle. Then it turned out that it was just nice to feel that a light cloud). Over time they have ever appeared burns and scars, and their limbs often found themselves in a cast, and their mother asked doctors biased questions.
"We do not even know what's happening to us and how to call it," — said Cann. Only after she turned 20, she began to seriously look for answers to these questions. "I wanted to send a message to an e-mail to the doctors and thus try to get an answer to these questions. Me and my sister Ruth showed a doctor at the Liverpool Institute, where he studied the problem of pain. And I also sent a letter to Addenbrooke's hospital (Addenbrooke). And then this letter was sent to Dr. Woods. "
Karen Cann was 29 years old when Woods first met with these sisters. "We just laid him what happened to us — she said of their first meeting. — It was like a psychological consultation. Poor Dr. Woods! "They wanted to know why they can not feel the smells. When they grew up, they were not sure whether they can sense odors or not, as the taste they were not lost. He was blindfolded and brought it to their noses orange and coffee. No reaction. He analyzed their blood and soon informed them of the mutation of the gene SCN9A.
"People think we're weird or hysterical, if you tell them that do not feel pain — told us the Woods. — Maybe you do not really want people to know about it. We found that families are reluctant to talk about the diagnosis to others, and prefer to keep it a secret. ". So Woods suggested that such cases are not as rare as commonly believed. "I think that there are more than one in a billion, — he said — or even a million. Adults with similar disorders often go unnoticed because they hide it. "
When Tara in 2009 met with Cann on the internet, she sent her an email and told her how happy she was to find someone with whom she can talk to, someone who can be an example for Ashlyn. Tara also wanted to find out more. How is life Cann? Does it feel hot or cold? Whether it is sweating? Tara also knew that Cann has a husband and child. What it means — to be a mother and not feel pain?
"In response, I sent her a very long letter by e-mail, because I wanted to reassure her and tell her that this feature was not an obstacle in the life of my sister and me — said Cann. — I knew that Ashlyn is still very young, and it was clear that in front of Tara difficult time. "
When Cann was the same age as Ashlyn, she started puberty and she became interested in boys. She also remembers that her scars and bothered so she hid her legs under long dresses. She is very shy about its features. She remembers how touched the hands of other girls and feel what they are soft and delicate in comparison with its own, which were rough and scarred. But then she felt better, she said Tara, and he and his sister graduated from school and then successfully studied at university. Each of them had a loving partner, great friends and a normal job. When she made love with her husband, she had the pleasure, or at least she thought she could feel it. "Intimacy is very nice — she said to me. — Perhaps my feelings are somewhat different, but still it's nice. " She has learned to live with its own characteristics, she said, and began to understand what things can hurt her — a process that lasted for nearly her entire life. However, a deeper understanding of existing problems has allowed her to cope with the role of an adult.
Cann gave birth to her first child at age 31 by caesarean section. The girl was born healthy, but then Cann felt some numbness on the right side. She returned home and made sure of their condition in a few weeks, but the numbness became more noticeable — although it was not painful. It was not until the moment when she heard a crunching inside of his body and began to have difficulty walking. She turned to the doctor and told him that she did not feel any pain, but she is sure that it is something in the order and asked for an X-ray. The doctor said that she will probably post-partum depression and she had to take the appropriate course of treatment. But she insisted, and in the end it turned out that she had at the time of delivery was damaged pelvis and internal bleeding opened. The next six months she spent in the hospital and could not walk at all.
As a result, the pelvis had healed so that one leg was shorter than the other, and she had to wear special shoes in order to compensate for this deficiency. However, apart from that there were no long-term disorders, and in 2011, Cann had a second child — this time his son — and also by caesarean section. At this time, x-ray was taken immediately after birth, and all went well.
Tara continued to correspond with Cann. "It gives me the opportunity to understand what to expect in the future Ashlyn on her life's journey — Tara said. — If something happens, I do not understand, I know that I can contact her and ask, not whether it happened something similar. "
Before Cann met with Tara and learned about Ashlyn, she did not like to tell people about their features. "She inspired me — said Kahn. — My sister and I saw the feature in a negative way — perhaps it was due to bodily injury, as well as the emotional pain and stress experienced by our family. But now I have decided that it is time to get something positive from it. I want people to know more about it. I am also even more inspiring possibility that doctors have used me as a guinea pig for further study of the phenomenon of pain as well as for the development of drugs that can be created on the basis of studying the features of my body. "
Despite all the support in the social network Facebook, despite the exchange of photos and feelings that Ashlyn Cann and related experiences of his life — despite all that Cann had never met blockers and never talked to them on the phone. When I asked her why she does not, she said, "I think I would have done it if it were not for the fact that I experienced a few years ago." She was referring to the despair that she had the following injury of the pelvis. At that moment, she realized that the inability to feel your own pain meant that not only could endanger herself, but may not be able to fully take care of your baby. "Emotionally, I am still very weak, and I would not want to be upset during the phone conversation and to frighten thereby the future of Tara Ashlyn, — she said. — Not in the sense that the same thing could happen to her. But because parents show concern, is it? "
Sometimes it seemed as if the whole city Patterson is a kind of network with external receptors of pain and awareness of the dangers which may expose themselves to a girl, do not feel pain. "One time she cut her leg — said Michael Carter (Michael Carter), her music teacher in high school Pierce County (Pierce County). — I do not know, maybe then she fell on the music stand, but in any case, at the foot of her blood appeared. " Could be felt in talking with many people in Patterson that Ashlyn took a strange and special place in their lives that they were proud of her and worried about her. "Middle school can be traumatic for some children — Carter said. — But it seems to me that somehow she managed it. She says, "Here am I". She can tell you about it. She loves to cuddle — she was very cheerful person. "
Her teacher in the arts Jane Callahan (Jane Callahen) reported on her mind, that she sees things a little differently. It is well to notice the details. A class teacher ee Lesseig Corey (Corey Lesseig) explained how important it is for her to live in a city like Paterson, where all of her knowledge and understanding, and she can feel comfortable while remaining itself. And he said, "I wonder what will happen to her when she grows up?"
Watching the way she wears her backpack as she walks down the hall, watching her in the week during a football match, painting lessons or band rehearsal, in which she plays the clarinet, I realized that it is difficult to think of her as a representative of a handful of people in the world whose bodies contain a mystery that may help answer a riddle associated with a feeling of pain in humans. How Staud said during our meeting in Gainesville, they are only slightly scratched with a surface layer that can be learned from Ashlyn. Most likely, it will still be studying for years, and she and her parents have become accustomed to it, to administer the test and to the realization that she, like Karen Cann, will never be able to fully defend themselves. Every day she was able to better understand the world around us and she knows better what it expects and what should qualify. Since then, many things have become easier for her, and the possibilities of her life extended. However, it is impossible to imagine beforehand all existing hazards, so she needs the help of all the people around her in order to show the current need to be careful.
"It's normal, — said her mother. — People say, "I do not know how you deal with it? Do not you need to protect it? "Well, we say:" I do not know, come to us and tell us whether we need to do something different. "