Emma and Stacy Picken suffer a rare genetic disorder, because of which their skin is growing six times faster than
Emma and Stacy Picken for the year losing almost 2 kg of skin that grows up to six times faster than ordinary people. Beauty treatments sisters takes more than two hours a day. In addition, the girls do not sweat, so they are forced to hide from the sun in the shade.
"In order to get rid of the painful itching, we are forced every day to put on a lot of skin creams, — quotes the 19-year-old Emma Daily Mail. — The house we have all the time to vacuum, removing the remnants of the skin, and the washing machine is constantly crashes out -this cream, which soaked clothes. " Emma said that she was very lucky she has a sister who understands it and knows what is passed through it to pass.
Mom and dad girls are carriers of the gene lamellar ichthyosis — a rare genetic disease that occurs in one person out of 600,000. Even if both parents DNA contains genes for the disease, only one of four children born sick from them, so the birth of the sisters with ichthyosis is very rare.
Failure in the genome leads to violations of the process of keratinization of the upper layers of the skin, as well as to enhance its growth. According to experts, each of the sisters for the year drops about 4 pounds of skin (1.8 kilograms). The bodies of girls at birth were covered with hard scales, the situation is improving with age, and the skin is cleaner, but the sisters still often have to take a shower and use a huge amount of cream to protect your skin from cracking.
Another problem is that the sisters Picken little sweat. During the heat of summer they have to hide from the sun, and applied to the skin and even sunscreen. "Above us are constantly laughing at school — says 17-year-old Stacy. But we are still willing to tell people about his illness to help them better understand people like us."
Plate ichthyosis is not the most severe kind of ichthyosis. It is much more of a problem is a harlequin ichthyosis, due to which the skin becomes like a shell. It is believed that with such a diagnosis until adolescence live one, despite all the effort and enormous amount of time it takes for skin care.
For example, a 18-year-old Hunter Steinitz looks as though it badly burned. Her body is covered with a thick layer of the skin is constantly cracking, which is why it seems as if the girl is covered with scales like a fish. Because the skin was too thick, Hunter can not completely close my eyes and bend my fingers.